Wednesday, December 6, 2017

PET Scan Results


This has been a very stressful few days. Chad's PET Scan was done on Thursday. The reason the test was ordered was because his whack job Oncologist ordered a weird tumor marker test and his results were elevated.

In an effort to calm my nerves, I did my own research and found that there could've been any number of reasons why the results were high and that it didn't necessarily mean cancer. Why did I have to do my own research? Because Chad's oncologist never called us to discuss the results.

Fast forward to a month ago when Chad took in his 24-hour urine test (Which was supposed to work in conjunction with the other test with elevated results) I checked and the results were posted within 48 hours. We never received any follow-up, yet again, from the oncologist so I, yet again, did my own research and was able to determine that Chad's results were on the high side of normal but definitely normal and didn't trigger any immediate red flags.

We carried on living.

Then the PET Scan arrived. We were told the results would be sent to Chad's oncologist within 24-48 hours. So Monday at the latest. We called Monday and left a message with the oncology office to see if the results were back. No response.

I called Tuesday morning - first thing. By the end of business day, still nothing so I called again. Left another message.

Chad did receive a call from Marion IL around 5 PM but there was no voicemail so we had no idea who it was or what it was about. (They call to remind you of appointments, etc.,)

So I called again this morning and said we had received a call, no voicemail. So if it was her, please call again. Sooner the better.

The end of the day was approaching and STILL nothing. I was losing my cool. Long story short, I called and was treated horribly. So much so, I ended the conversation in tears. I asked this asshat "Mike" who works for the oncologist office to let the doctor know that if she did not phone my husband with the test results within the hour, my next step would be contacting patients advocate office. Due to the man who answered the phone being a rude, condescending jerk - I called them anyways to file a complaint against him (left a message)

Wouldn't you know it. Within ten minutes Chad got a phone call from his oncologist.  I find it really sad and quite pathetic that a doctor,  an ONCOLOGIST, knowing how anxious and concerned your patiently obviously is - only bothers to make a phone call once they receive the threat of their negligence being reported.

Chad took the phone call and let her know he was dissatisfied with her communication. She seemed almost surprised he wanted her to phone him if the results were good. What? How are we supposed to even know that?  Of course you phone your patient to let them know the results of the damn test.

If you didn't catch that? None of this other drama matters, because yes.. the test results were good!

While she didn't give any in-depth explanation,  the results look fine and there's nothing of concern so - while I wish getting here would've been less stressful - it looks like Chad remains NED! (No Evidence of disease)

We thank God and we thank YOU for your never ending concern and best wishes. It was indeed the best belated birthday gift he could have received <3

Friday, November 17, 2017

Happy Birthday?

November 16, 2017 - We went to Marion, IL to drop of Chad's 24 Hour Urine test and to see the chiropractor. While he wouldn't even touch Chad's neck because he said it was so bad (from the images, said Chad needs surgery. Ha. No Kidding) He did adjust his back and give some exercises to do at home. The end goal is to get them to refer Chad to a local guy but it will take 6 visits with this guy since this is a new program with the VA here.

We also found out Chad's PET Scan has been scheduled. For. November 30th - 8 am. His Birthday. *sigh*

We won't get the results that day but we're really, really hoping it is going to be the best birthday present ever with another "NED (No Evidence of Disease) |Report"!

He's been doing pretty well lately, all things considered. We count our blessings.

Many thanks for the love and continued prayers.

Wednesday, November 8, 2017

Full Circle - Another Trip To The ER

In January of 2015 I rushed Chad to the hospital for crippling stomach pain. It was not the first time. A couple years prior - same thing. And it happened several times before I came in the picture. The visit in '15, is what inadvertently led us to his cancer diagnosis.

Since then it's been one thing after another including a massive hernia which was repaired a few months ago (June 2017).

On November 7, 2017 the stomach troubles struck again. I was working/at the gym when Chad was communicating how sick he felt. After he got home from work, with the help of his super awesome nurse Brenden (his son, he was SUCH a trooper) Chad slept for a little over an hour. Hoping he could just push through it. By the time I had gotten home, he had thrown up for about 6 hours straight with the exception of his nap.

All his symptoms pointed to food poisoning and he tried to get it to settle on its own. At about 8:30 after vomiting so violently I have no idea how he could still be conscious, we made the decision to take him to the ER.

It's never an easy decision. I wouldn't normally recommend people go to the ER for some sort of virus but in this case - I didn't see any other option. He could not stand, sit, walk - nothing. The only position he found any comfort in was kneeled over with his face in the couch. The second he tried to move - off to the bathroom he went.

As a wife, it's horrible to see. Being so absolutely helpless. Considering what happened the last time we went through this, I can't even begin to express the fear and concern that was shooting through me.

To be frank - while we are trying to remain optimistic, he has a lot of symptoms lately - paired with the blood test results that are just concerning. When cancer touches your life, it changes you. When you get a super aggressive strain, every ache and pain is worrisome.

When I say he was violently ill, I'm not exaggerating even remotely.  We arrived at the ER around 8:30 PM. The waiting room was full. We got into triage and once they seen his condition and knew his history - we were immediately taken to a room.

Again, he couldn't sit so picture Chad face down in the gurney, arms hanging over, butt up in the air - dying from the inside out. The nurse came in almost immediately, drew his blood and gave him anti-nauseous medication. She was a God send. Everyone there was.

Once the doctor came to see us, he said the blood work is what he would expect of someone who had been that severally ill for that long. He did say he was concerned though due to Chad's history and wanted to run a CT Scan to ere on the side of caution and make sure everything intestinal looked alright and also that his Hernia Repair mesh was still in tact.

All was well. The medication helped a ton and within the hour Chad had improved enough to lay back on the gurney. His Mom came to the hospital and she said ever since he was a kid, his stomach has put him through pure chaos when he had to vomit. It's intense. Very, very difficult to watch. I can't imagine what it's like to endure.

We got home and eventually got settled just before 2 AM. He woke up about an hour and a half later and began vomiting again. I really thought we were going to head back to the ER. Fortunately, he was able to keep a tablet down which calmed his stomach enough to fall back to sleep.

He has not gotten ill since about 4:30 AM.

We later found out, there is a really bad stomach virus going around the town. Apparently, Chad fell victim. I believe I even got a touch because I began getting sick but my stomach is a steel cage, so I'm alright (haha)

This is a mighty long post to talk about a stomach bug but it is representative of our lives now. It doesn't matter what it is, the mind goes crazy with the worse case scenarios spinning through your head. The harsh realities of life are overwhelming sometimes. I am just SO grateful for all the genuine and thoughtful people out there who truly understand what this is like. Who reach out, offer prayers and support and are truly in our corner. I will NEVER be able to properly express how much it means to me.

Much Love
xo