Wednesday, December 6, 2017

PET Scan Results


This has been a very stressful few days. Chad's PET Scan was done on Thursday. The reason the test was ordered was because his whack job Oncologist ordered a weird tumor marker test and his results were elevated.

In an effort to calm my nerves, I did my own research and found that there could've been any number of reasons why the results were high and that it didn't necessarily mean cancer. Why did I have to do my own research? Because Chad's oncologist never called us to discuss the results.

Fast forward to a month ago when Chad took in his 24-hour urine test (Which was supposed to work in conjunction with the other test with elevated results) I checked and the results were posted within 48 hours. We never received any follow-up, yet again, from the oncologist so I, yet again, did my own research and was able to determine that Chad's results were on the high side of normal but definitely normal and didn't trigger any immediate red flags.

We carried on living.

Then the PET Scan arrived. We were told the results would be sent to Chad's oncologist within 24-48 hours. So Monday at the latest. We called Monday and left a message with the oncology office to see if the results were back. No response.

I called Tuesday morning - first thing. By the end of business day, still nothing so I called again. Left another message.

Chad did receive a call from Marion IL around 5 PM but there was no voicemail so we had no idea who it was or what it was about. (They call to remind you of appointments, etc.,)

So I called again this morning and said we had received a call, no voicemail. So if it was her, please call again. Sooner the better.

The end of the day was approaching and STILL nothing. I was losing my cool. Long story short, I called and was treated horribly. So much so, I ended the conversation in tears. I asked this asshat "Mike" who works for the oncologist office to let the doctor know that if she did not phone my husband with the test results within the hour, my next step would be contacting patients advocate office. Due to the man who answered the phone being a rude, condescending jerk - I called them anyways to file a complaint against him (left a message)

Wouldn't you know it. Within ten minutes Chad got a phone call from his oncologist.  I find it really sad and quite pathetic that a doctor,  an ONCOLOGIST, knowing how anxious and concerned your patiently obviously is - only bothers to make a phone call once they receive the threat of their negligence being reported.

Chad took the phone call and let her know he was dissatisfied with her communication. She seemed almost surprised he wanted her to phone him if the results were good. What? How are we supposed to even know that?  Of course you phone your patient to let them know the results of the damn test.

If you didn't catch that? None of this other drama matters, because yes.. the test results were good!

While she didn't give any in-depth explanation,  the results look fine and there's nothing of concern so - while I wish getting here would've been less stressful - it looks like Chad remains NED! (No Evidence of disease)

We thank God and we thank YOU for your never ending concern and best wishes. It was indeed the best belated birthday gift he could have received <3

7 comments:

  1. I hate that run around so much...its cruel

    However YIPEEE and praise the Power of Prayer!!!!

    Love you both!!!

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  3. so thrilled you finally got good news results but so sorry the hell you went through to get them

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  4. GREAT NEWS CHAD! So glad you're still cancer free! That chemo I was on for almost 5 yrs is still blocking mine. You're right many of these doctors think we're idiots & they are so far above us that we wouldn't understand if they did call us w/information. Thank God mine isn't like that - he wants to know if there is ANY change, has me take regular tests & (his nurse)calls me with the results. Have a wonderful Christmas my friends and a New Year filled with bliss! God bless & huggs, Jim & Edwina(MissMagnolia).

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  5. Don't know why this thing ID'd me as "unknown". Just don't know how to work it. I guess.

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  6. Alleluia for that news........frustration and beyond but the end result and news was fabulous! I'm lame not getting this here until now, but my thoughts and prayers have continued. Prayers continue for all fighting this battle and two of my sisters who also have and one who will for the rest of her life as it has broken loose into the bone and that is just maintained and treatments for the rest of life. Very hard for me to swallow this for her as she is ten years younger than myself. Six of we sisters and why oh why.........prayer is the answer and making Our Medical People accountable. Yes, they have a lot on their plates but we do/have also. Half the stress is relieved when we know what is lying ahead of us. So thrilled you had the news prior to Christmas if I am reading this correctly!
    Blessings and prayers continue and know you are in my heart.
    You both have been through a living **** with all of this. The rest of life I pray is much less stress free and forward march. We all have our trials in life but please God let them be bearable and with loving people beside us!
    God bless....Mary Lou ;)

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